Well, since I last provided an update, I have remembered to take my morning AND my evening doses of Salazopyrin and it seems to have made all the difference. I’ve been barely symptomatic at all since the last time I provided an update. The times that I have been a little symptomatic, it’s limited to the ankle and its because I’ve gone on a run, or had a long St John shift. Perfectly reasonable and expected if you ask me.
All in all, I’m very pleased with my progress provided I take both the Adalimumab and the Salazopyrin. I guess that makes me a little concerned in the sense that I wonder what will happen when he General lets me step down off Salazopyrin altogether and how I will react to that. Right now, I wonder if longer term, I will need to continue to take both. I do hope not. After all, it is toxic medication. And the less one has to endure in the long run, the better off one will probably be.
But I also think that I shouldn’t worry about all that right now and enjoy the fact that I have been quite stable and pain-free. So I’ll do that instead!
This last week has seen my left ankle quite grumpy. It's not grumpy enough to bring back my limp, but there has definitely been some general umpleasantness about it. From a pain score point of view, it's around two and a half.
Of course it would help if I remembered to take Salazopyrin at night. Over the entire week, for some reason, I have remembered to take the two tablets in the morning, but I haven't remembered my evening dose.
BAD Sharon. BAD BAD BAD Sharon.
Must make more efforts and perhaps set up some reminders.
Aside from that, I am pretty well and I'm looking forward to a relatively relaxing weekend. And with any luck, I'll be heading out for a run should the weather become a bit kinder and the pathways less wet.
And on that note, it's just after 4pm on Friday. Beer O' Clock! Happy weekend all.
Of course it would help if I remembered to take Salazopyrin at night. Over the entire week, for some reason, I have remembered to take the two tablets in the morning, but I haven't remembered my evening dose.
BAD Sharon. BAD BAD BAD Sharon.
Must make more efforts and perhaps set up some reminders.
Aside from that, I am pretty well and I'm looking forward to a relatively relaxing weekend. And with any luck, I'll be heading out for a run should the weather become a bit kinder and the pathways less wet.
And on that note, it's just after 4pm on Friday. Beer O' Clock! Happy weekend all.
Yes, another weekly update that is four days late. I really must make an effort to get back on schedule.
It was last Friday in the afternoon that I last posted on here (complete with the pictures) details regarding my post-run swelling. So naturally, you might think a smart person would have learned to take it easy. A smart person would slow down. A smart person would not back up their run two days later with another run after such arthritic results.
Hey, I never professed to be smart.
The run on Saturday actually went better than the first run the previous Thursday. For starters, I ran further and longer. Not much longer and further mind you but a little bit makes the difference. The pain and swelling I experienced from the run on Thursday had gone so in all honestly there no real barrier to having another go. After the run on Saturday, the ankle swelled up and there was a little bit of pain. It behaved in exactly same manner as after the Thursday run, except that the symptoms didn’t take 20-something hours to appear. My ankle was ‘tired’, if I can call it that, immediately after I pulled up Saturday morning.
To make matters more interesting, the Big Day Out was held in Melbourne the following day (Sunday) and since I love these big events, I had put my name down to volunteer. It hit 39 degrees C at some stage in the afternoon. ‘Carnage’ is a word I’d happy use to describe how the BDO went. There were no moments to rest. Given what I had put the ankle though the past 4 days, I was extremely pleased with how it held up. Again it was quite tired-feeling by the time I got home but this was no surprise given that all us volunteers were completely knackered and stank worse than a council tip.
I haven’t been able to run since as the weather has not been all that wonderful. I might try and go tonight or tomorrow. We will see.
This week (Week 20) was also noted by a trip to K. My blood tests from last visit were all fine. There was some swelling in my left ankle (duh) and also in my right ankle (????). But other than that, it was a fairly unremarkable visit with only the small batch of surveys to complete and no physical assessment due.
It was last Friday in the afternoon that I last posted on here (complete with the pictures) details regarding my post-run swelling. So naturally, you might think a smart person would have learned to take it easy. A smart person would slow down. A smart person would not back up their run two days later with another run after such arthritic results.
Hey, I never professed to be smart.
The run on Saturday actually went better than the first run the previous Thursday. For starters, I ran further and longer. Not much longer and further mind you but a little bit makes the difference. The pain and swelling I experienced from the run on Thursday had gone so in all honestly there no real barrier to having another go. After the run on Saturday, the ankle swelled up and there was a little bit of pain. It behaved in exactly same manner as after the Thursday run, except that the symptoms didn’t take 20-something hours to appear. My ankle was ‘tired’, if I can call it that, immediately after I pulled up Saturday morning.
To make matters more interesting, the Big Day Out was held in Melbourne the following day (Sunday) and since I love these big events, I had put my name down to volunteer. It hit 39 degrees C at some stage in the afternoon. ‘Carnage’ is a word I’d happy use to describe how the BDO went. There were no moments to rest. Given what I had put the ankle though the past 4 days, I was extremely pleased with how it held up. Again it was quite tired-feeling by the time I got home but this was no surprise given that all us volunteers were completely knackered and stank worse than a council tip.
I haven’t been able to run since as the weather has not been all that wonderful. I might try and go tonight or tomorrow. We will see.
This week (Week 20) was also noted by a trip to K. My blood tests from last visit were all fine. There was some swelling in my left ankle (duh) and also in my right ankle (????). But other than that, it was a fairly unremarkable visit with only the small batch of surveys to complete and no physical assessment due.
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